PAWS (Post Acute Withdrawal Syndrome)

Specific emotional or mental health problems, like anxiety, depression, insomnia, confidence etc. Along with bodily health, exercise, nutrition.

Re: PAWS (Post Acute Withdrawal Syndrome)

Postby Lottie38 » 10 Dec 2012 09:17

FrazzledFraggle wrote:Lottie, how is the pain in your legs now, has it gone? I've been experiencing pain in my inside lower legs/ankles/feet for weeks now since I quit, and it seems to be getting worse if anything. Can PAWS cause physical pain or am I adding 2 and 2 together and making 5 ? :? :? Also been getting needling pains randomly in fingers and toes since quitting.


FF sorry for delay - my legs seem ok now and I'm taking b and c fits. But I am so tired and lethargic I can barely get out of bed at the min. Don't know if that is PAWS too or alc neuropathy?! So many things. This drinking - why did we ever do it ;)

Lotts x x
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Re: PAWS (Post Acute Withdrawal Syndrome)

Postby smudge » 14 Dec 2012 16:40

For anyone suffering from leg pain or bone pain, have you considered Vitamin D deficiency? I read this today and thought it might be of interest...

Half of the UK's white population, and up to 90% of the black and Asian people in the country are thought to be affected by vitamin D deficiency.

The first signs of deficiency include muscle and bone pain as well as swelling around the wrists and ribs.

A lack of the nutrient is linked to a higher incidence of diabetes, tuberculosis, multiple sclerosis as well as rickets - a disease that causes bones to become soft and deformed.
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Re: PAWS (Post Acute Withdrawal Syndrome)

Postby Arcturus » 05 Jan 2013 07:51

Lottie38 wrote:
FrazzledFraggle wrote:...I've been experiencing pain in my inside lower legs/ankles/feet for weeks now since I quit, and it seems to be getting worse if anything. Can PAWS cause physical pain or am I adding 2 and 2 together and making 5? Also been getting needling pains randomly in fingers and toes since quitting.
FF sorry for delay - my legs seem ok now and I'm taking b and c fits. But I am so tired and lethargic I can barely get out of bed at the min. Don't know if that is PAWS too or alc neuropathy?! So many things. This drinking - why did we ever do it.
Hi Lottie and FF,

A couple of things in your comments caught my attention, and I thought maybe I should share my PAWS story.

I'm certainly a victim of PAWS [7 Jan 2013: based on the discussion below, I think that I should define my own particular case as prolonged alcohol withdrawal syndrome, rather than "post acute"] - I meet the qualifications for "kindling" (repeated detoxing resulting in more serious and prolonged withdrawals - here's a link to a Wikipedia article about that: http://en.wikipedia.org/wiki/Kindling_%28substance_withdrawal%29 ).

I've been abstinent for 12 days now. I was drinking sometimes two bottles of wine a day for almost two months, set off by an onslaught of crises, after months of sobriety. Certainly not my first binge...I've detoxed many times in the past few decades.

I have definitely experienced increased pains in every part of my body. The intensity seems to move around. First my knee is painful to walk on, it improves, and then my left shoulder starts aching...then my neck gets stiff! Then I have painful bowels.

I've also developed my first case of interstitial cystitis (irritable bladder, constant urge to go) out of nowhere! I remember that the cystitis first occurred during the middle of the two-month binge, when I quit drinking for about 5 days, and it stopped when I started drinking again! That's part of the reason I continued until the holidays, so that I could stave off this sometimes painful cystitis, that even woke me repeatedly.

It took 8 days AF for the cystitis to come back this last (and I mean LAST) time. Oddly enough, I have finally discovered that a simple aspirin stops it for hours, even if I drink coffee with it, leading me to believe it's rebound inflammation.

Today I was given a stronger anti-inflammatory (a COX2 inhibitor) that the doctor prescribed, who explained that alcohol has an anti-inflammatory effect while it's in your system, but it can result in painful (and dangerous) rebound inflammation in every tissue of your body when it's withdrawn...which explains my painful joints, inflammed bladder, stiff muscles, IBS - thus tying all my symptoms together under "runaway" inflammation. So far, no more cystitis! <knocking on wood>

Lottie, [this is not about PAWS] during my first few days of withdrawal, I have always got frighteningly exhausted and weak, but ignorantly I never connected it with withdrawal (I used to stop drinking for weeks at a time, just because I had no reason or stress to drink). Actually, I used to think I was getting ill.

But this time I actually measured my blood sugar, and I was severely hypoglycemic! (Down in the 50's mg/dL after eating!) I was advised on another site to try a glutamine supplement. Dr. Priscilla Slagle says that it tends to activate the liver to release glycogen into the blood (raising blood sugar) and reduce the overproduction of insulin that the pancreas has been conditioned to do to offset the alcohol, as well as repair the lining of the intestines (which alcohol has damaged). It all sounded too good to be true, but I tried it during the first few days, and though it may have been a placebo effect (I doubt it, since I often don't respond to medication the way I'm told I will), I soon felt more energy and strength - and not the nervous jitters of caffeine. [Glutamine is an amino acid, and I've often read that one should not take just one or two aminos for long periods of time as they will displace the other essential aminos.]

In addition to multi-vitamins and minerals, especially B's and magnesium, I also take large doses of niacinamide and Vitamin D, both of which supposedly help reduce inflammation and lift one's mood. Actually, I think it's working. This withdrawal has been rough, but not as rough as I fully expected, given my setup. The doctor also has me on a low dose of a benzodiazepine to control my hypertension and anxiety.

The hardest part is the variability of the symptoms - one day I may feel great and optimistic, and the next I feel like s***. There was even a point at Day 5 or 6 that I felt drunk again! And I'd had no booze! Day 10 felt fantastic - I woke up from beautiful dreams and delicious sleep - I thought I was all over it and I was really excited. :D [This is where I personally believe my acute phase ended.] And soon after...I felt like I was going through withdrawal again! Insomnia and bad dreams if I slept at all, anxiety, aching, cystitis, nausea... :(

Hope this helps with your bumpy ride on the withdrawal roller coaster! :shock: I hope yours is much shorter than mine has been - but this is something I have done to myself, knowing in the back of my mind that each binge would have a more wretched withdrawal. I hope this is my very last. <And I hope saying that didn't jinx it! :? >

Arc
Last edited by Arcturus on 07 Jan 2013 18:38, edited 2 times in total.

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Re: PAWS (Post Acute Withdrawal Syndrome)

Postby Arcturus » 07 Jan 2013 05:53

I know this should probably be on the Two-Week Board or something, but for the benefit of those suffering PAWS, I wanted to continue the chronicle above by saying that on my Day 14 AF today, my symptoms are becoming very erratic again. Sweating and too hot one hour, cold and chilling the next. My temperature dropped to 96F (35.5C) tonight. I'd had nothing to eat or drink just prior, but I felt freezing and very "unwell". Blood pressure all over the map all day. I feel like my body is as deregulated as Wall Street, and I can't even plan what I'll do the next day because I never know how I'll feel. At least, after a drunk you know you'll have a hangover and feel bad - with this prolonged withdrawal, I have no idea in what condition I'll wake up.

Thanks again, Smudge, for referring me to the posts of others' prolonged withdrawals. I read them often to remind me that I can hope for an end of this misery and of this dread of what's coming next.

Arc
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Re: PAWS (Post Acute Withdrawal Syndrome)

Postby grendeldave » 07 Jan 2013 06:42

I am wondering if there is a bit of confusion arising over what PAWS is. Maybe the confusion is in my head. After all, my brain has been affected by PAWS! :lol: As I understand it there is firstly the acute withdrawal phase (acute in medical terms meaning sudden onset/short duration). This may last several weeks. Most immediate physical withdrawal symptoms usually disappear in the first week or so but some linger on. Posters frequently mention having cold symptoms in weeks 2 and 3. Psychological symptoms such as increased anxiety and insomnia take a bit longer (assuming no underlying health problem).

PAWS comes later and I understand is typically first encountered, if at all, after at least a couple of months abstinence.

I am quite happy to stand corrected and to be honest it does not affect me personally as I know what my PAWS is like but I would like to point out this. If somebody erroneously ascribes the tail end of their initial, acute withdrawal to PAWS then they might have an unexpected surprise further down the line.

So, call your condition PAWS by all means but just be prepared for PAWS 2, the sequel. Whatever it is, hang on in there. Drinking won't cure anything.

Dave

Edit: Arc - that wasn't directed at you! I've been meaning to chuck in my tuppence worth for some time.
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Re: PAWS (Post Acute Withdrawal Syndrome)

Postby smudge » 07 Jan 2013 12:55

I'd always thought that PAWS started where acute withdrawal left off, and that acute withdrawal lasts no more than a couple of weeks, and probably quite a bit less for many people. I also thought that the acute and post acute phases just merged into each other.

The unpleasant physical symptoms that people get (that continue long after the acute phase) I assumed were due to the generally poor health that the heavy drinker suffers as a result of vitamin and mineral deficiencies from their drinking days. And fixing that can take a long, long time particularly if the person has been left with a damaged gut and absorption problems.

So, technically you may be right, Dave, but I think the PAWS thread is probably the ideal place for people to discuss these physical issues anyway because they are part of the process of recovery.

If anyone wants to compare symptoms of the acute phase and the post acute phase of withdrawal they can be found here and here
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Re: PAWS (Post Acute Withdrawal Syndrome)

Postby grendeldave » 07 Jan 2013 15:36

No smudge. Like all syndromes PAWS affects people in different ways but there are distuinguishing features. In particular the symptoms come and go in cycles so there is usually a gap between the end of the acute withdrawal phase and the first PAWS 'attack'.

I think it is important to realise that symptoms are indicative, not definitive. In other words one should not say ''I have a, b, c symptoms therefore I have condition x. Doctors use more than symptoms to make a diagnosis. Similarly it is not particularly useful to distinguish between conditions simply by comparing lists of symptoms, especially when dealing with a syndrome.

I totally agree that some of us need a place to discuss long-term physical symptoms (mental health problems are better caterd for, I feel) but I do question whether the PAWS thread is the right place. PAWS is predominantly manifested as psychological problems, not physical ones.

If somebody wants to label their symptoms PAWS then that is their prerogative but if they are wrong then they will need another label when the real McCoy comes along. That's all.

Dave
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Re: PAWS (Post Acute Withdrawal Syndrome)

Postby smudge » 07 Jan 2013 16:07

Okay. But setting up yet another thread for physical problems would just makes things confusing for people because health problems of any kind don't come along with a label. So, if people are happy to use the PAWS thread then I see no reason for things to change. But if anyone wants to add another thread, I won't complain about it. :)
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Re: PAWS (Post Acute Withdrawal Syndrome)

Postby Arcturus » 07 Jan 2013 17:53

Yes, I may be blaming PAWS for just prolonged alcohol-withdrawal syndrome (whose acronym would still be PAWS, confusingly enough) due to a phenomenon called "kindling" - which proposes that repeated withdrawals increase the severity and length of each succeeding withdrawal (something I can attest to!). There is significant research to support this.

My acute withdrawal symptoms used to be over within a couple of days (when I was young), but in recent times, they usually run their course in a week or so.

However, there was a definite break in my withdrawal this time, when I felt much better on day 9 and fully recovered on day 10. I was sure that it was over. Then I'm hit with similar symptoms all over again two weeks after stopping. Perhaps this is actually an infection that has set in due to my alcohol-compromised immune system. [UPDATE: My medical tests show no sign of infection.]

My main intent in waffling on about my experience is to help people in prolonged withdrawal with the knowledge that others like me have suffered just what they are experiencing, and perhaps thus alleviate some of their fears. Also, to warn younger readers of what this horrendous addiction can lead to.

Arc
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Re: PAWS (Post Acute Withdrawal Syndrome)

Postby Givingitago » 07 Jan 2013 22:12

Hello

It would be horrible for anyone to go untreated for a condition they thought was PAWS but was actually something else, serious or otherwise.

No harm in discussing anything here, as long as a medical opinion is sought?

Jen

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Re: PAWS (Post Acute Withdrawal Syndrome)

Postby smudge » 08 Jan 2013 00:24

I would agree about seeking proper medical advice for any worrying symptoms, GIAG. For every single post on this forum the forum guidelines apply. And the last paragraph of those guidelines states :

"Please also remember that any advice received here regarding detoxification or withdrawal from alcohol should not replace direct consultation with a medical professional."
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Re: PAWS (Post Acute Withdrawal Syndrome)

Postby powellct » 08 Jan 2013 08:04

Morning. My two penn'orth.....
I run SRUK groups, and this (although not directly a SMART reference) is what I teach my people.

"PAWS symptoms reach a peak from three to six months after we get clean. Any use of drugs or alcohol, even in small quantities or for a short time, will effectively eliminate any improvement gained over that time, as it will keep the brain from healing. There are a variety of symptoms. Not everyone will experience all of them."

So the inference there is that following the acute withdrawal, we enter a phase where (presumably) our brains are readjusting to life without whatever our DoC was (do note PAWS isn't confined to alcohol users - to me this would imply its "reward centre" related, but what do I know). Certainly experience tells me people get really "wobbly" at 3 months, up to 9 months. Whether that's attributable to PAWS is anyone's guess, but as grendeldave says, symptoms alone are not a diagnosis.
What I would say is that there doesn't appear to be a defined acute/post acute line, so as Smudge says one phase merges into another - the timeline appears to be entirely individual.
The other thing is knowledge is power - I don't care if its called "Fucked-Up Dopamine Receptor Syndrome" - as long as I know what it is, I can deal with it in a rational way.
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Re: PAWS (Post Acute Withdrawal Syndrome)

Postby jane73 » 08 Jan 2013 15:43

Thank you so much for all the information on this thread. I am approaching the 4 week mark and coping ok so far. BUT I know it won't be long before my personal ELF starts cajoling and then she'll start threatening and then she'll throw a major tantrum. I feel forewarned that she's going to do this so I hope I'll be ready for her thanks to you all.

I'll be posting on here big-time when she comes a calling. Perhaps it would help to give her a name?
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Re: PAWS (Post Acute Withdrawal Syndrome)

Postby powellct » 08 Jan 2013 16:56

Well done on coming up to 4 weeks Jane...

Just remember - during those 4 weeks you will have had cravings - and have survived them. They didn't kill you. Made you feel uncomfortable, yes, but when the EAF comes a-knocking, just remember that the only person who makes you pick up is you - no physical need to survive, and certainly not a pretty little voice whispering in your ear!
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Re: PAWS (Post Acute Withdrawal Syndrome)

Postby dogwalkingloon » 12 Jan 2013 16:36

i had a read of this for the first time lst night. i had seen paws mentioned a few times but didnt fully know what was being talked about.

It makes alot of sense and after 20 years of heavy drinking my body is going to take a lot of getting back to a normal state so i will keep an eye out for symptons.

many thanks for the posters ;)?
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Re: PAWS (Post Acute Withdrawal Syndrome)

Postby jude999 » 13 Jan 2013 00:19

Hi thanks for this thread, very enlightening.

I have been drinking a lot for a long time!!! Started developing acute
pain in legs a while back, looked up neuropathy, saw it was only going
to get worse so decided to quit..am taking a B complex with Thiamine which
I believe may help.......Am out walking in the sun for last 2 weeks,
actually going for a limp!!!! on the beach each day....Pain seems worse
than before..On day 13 (wow) any ideas when, or even if, I will get
some relief.
Anyone else suffering out there. Any advice?

Thanks again......Gotta love BE
Jude x
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Re: PAWS (Post Acute Withdrawal Syndrome)

Postby Arcturus » 13 Jan 2013 02:21

jude999 wrote:Started developing acute pain in legs a while back, looked up neuropathy, saw it was only going
to get worse so decided to quit...
I've certainly had the leg pains! It usually happened at night in bed when my body was apparently decreasing the level of alcohol. It's awful, impossible to sleep with that pain. Since I've stopped alcohol, I don't have the leg pain anymore.
jude999 wrote:am taking a B complex with Thiamine which I believe may help
B complex with extra thiamine is good!
jude999 wrote:Am out walking in the sun for last 2 weeks
Also good. My blood pressure and anxiety have definitely decreased with extra exercise and just getting outside and moving.
jude999 wrote:actually going for a limp!!!! on the beach each day....Pain seems worse than before..
My pains all got much worse during the first couple of weeks. Have you considered calcium and magnesium supplements? They really help my pain from muscle and joint stiffness when I remember to take them.
jude999 wrote:On day 13 (wow) any ideas when, or even if, I will get some relief.
;)? First, good for you!Two weeks now! As to when you'll feel significant relief is anybody's guess. Our bodies are each different. And even the same person can experience different types and lengths of withdrawal at different times.
jude999 wrote:Anyone else suffering out there.
Oh, you better believe it! I feel your pain! Insomnia and unstable BP are still messing with me in addition to nasty bouts of IBS, and I'm 20 days out now. But it's definitely getting better.
jude999 wrote:Any advice?
Sounds like you're doing a great job. Keep those nutritional supplements and that outdoor exercise going is all I would say.

All my best and congratulations on TWO WEEKS! (::)

Arc

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Re: PAWS (Post Acute Withdrawal Syndrome)

Postby jude999 » 13 Jan 2013 08:36

Well Arc thankyou for the wonderful reply!! Seems I've ticked all the
boxes so shall keep on doing what I've been doing.

Well done on 20 days, sorry about IBS have had a couple of bouts and
it aint fun. Hope your BP stabilises soon. Things can only improve
now we have stopped pouring the poison down our throats.

All the best Jude x
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Re: PAWS (Post Acute Withdrawal Syndrome)

Postby Sandy » 13 Jan 2013 08:43

Hi Jude have bumped a thread for you to have a look at
Hope it helps!
Great work ;)?
Sandy
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Re: PAWS (Post Acute Withdrawal Syndrome)

Postby Arcturus » 25 Jan 2013 14:48

Well, I'm 32 days AF, and I think I've truly entered the psychological PAWS that Grendeldave was referring to.

After the acute stage was over in about 9 or 10 days, I had a break when I felt fine. Then the physical symptoms returned as never before. Those have mostly passed again, but I'm feeling really crippled mentally and emotionally. To my dismay, I'm feeling, severely, many of the symptoms described in the Wikipedia article on PAWS:

    1. anhedonia (I feel little pleasure in anything that I used to enjoy)
    2. depression (it gets really dark and gloomy, I feel like my life has been and is worthless - luckily, I have very few cravings for alcohol - don't know how I've escaped that)
    3. "impaired interpersonal skills" (normal conversation is difficult and unpleasant now - very different from my normal talkative self and very troubling)
    4. pessimistic thoughts (I'm retiring but instead of looking forward to freedom, I just keep worrying that I'll not have enough money to survive or I'll get very sick and need long-term care that will drain my finances - I guess those ruminating thoughts are rather OCD)
    5. lack of initiative (it's agonising to get up and do anything at all - mow the grass, clean up the kitchen, go shopping, mark papers [I'm a teacher], even cook dinner for myself...can hardly manage, I just pick up take-out dinners most days)
    6. memory problems (I often can't remember what day of the week it is!)
    7. emotional overreactions or numbness (BOTH! I sometimes get shockingly angry over little things, but feel kinda "dead" emotionally most of the time)
    8. sleep disturbances (I feel sleepy when I should be awake and have insomnia when I need to sleep)
    9. increased sensitivity to pain (I have felt this since Day 10 AF - everything hurts more, my joints, my muscles)
I think because I'm taking benzodiazepines prescribed by the doctor to get me through this withdrawal, I don't feel the bouts of anxiety and panic that I've felt upon w/d from alcohol in the past. But then I'll likely go through more PAWS weaning off of these benzos...great. :|

Basically, after a month AF, I feel miserable, worthless, sometimes very angry, and often wonder what's the use of this sobriety. I'm never happy any more. I'm much less of a productive, creative, active person now...I just feel empty and lonely and lethargic...but don't really want to talk to people, or read, or do anything. Thank goodness, I guess, that I still have to go to work. Maybe I shouldn't retire yet - at least work forces me to get up and do something.

Arc

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